Tobetsa mona ho bonts'a lifolakha tsa HAO leqepheng lena mme u lefelle katleho feela

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"Dementia" ea Young-Onset e ama batho ba fetang 1200

ngotsoeng ke mohlophisi

Batho ba fetang sekete ba anngoeng ke ho fokola ha frontotemporal degeneration (FTD), e leng 'dementia' e atileng ka ho fetesisa ba ka tlase ho lilemo tse 60, ba ile ba kopana ho hokahana, ho ithuta, le ho ikopanya le sechaba se utloisisang lefu lena ho Mokhatlo oa Frontotemporal Degeneration's (AFTD) thuto e nyalisitsoeng ea pele. Seboka, ka Labohlano la la 8 Mmesa.              

Batho ba fumanoeng ba e-na le FTD, balekane ba tlhokomelo, bahlokomeli, bafuputsi, litsebi tsa tlhokomelo ea bophelo bo botle, le litsebi tsa indasteri ba bile teng Sebokeng sa Thuto sa 2022, ka bobeli BWI Airport Marriott haufi le Baltimore, hammoho le hoo e batlang e le. Hoo e ka bang batho ba 200 ba bile teng Baltimore bakeng sa boiphihlelo ba pele ba kopano ea motho ka mong ho tloha ka 2019, ha bangoli ba fetang 1,000 ba tsoang linaheng tse 29 tse fapaneng ba ile ba ikopanya ka tsela ea livestream.

Letsatsi le ne le e-na le lipuo tse shebaneng le mehato ea morao-rao ea lipatlisiso tsa FTD, phihlelo ea balekane ba tlhokomelo ea FTD e fapaneng, le puo ea 'dementia', e hlahisoang ke litsebi lefapheng la FTD/dementia. Ka bobeli motho ka boeena le batho ba neng ba le teng ba ile ba khona ho nka karolo lithupelong tse kopanetsoeng tse ileng tsa shebisisa ka botebo lintlha tsa bohlokoa tsa leeto la FTD.

AFTD's Persons with FTD Advisory Council, sehlopha sa batho ba phelang le FTD ba thusang ho tsebisa mosebetsi oa AFTD, ba ile ba arolelana maikutlo a bona mabapi le ho phela le lefu lena. Hamorao, setho sa Boto ea AFTD, Rita Choula, MA, mookameli oa tlhokomelo ea tlhokomelo Setsing sa Leano la Sechaba la AARP, o ile a fana ka puo ea sehlooho ea kopano, a arolelana leeto la 'mè oa hae le FTD le kamoo lelapa la hae le ileng la tsamaisa phihlelo kateng. Mme Choula o rometse boipiletso ho batho le batho ba anngoeng ke FTD ho "beta sebete" ho buella tlhokomelo, bakeng sa baratuoa ba bona le bona ka bobona.

Mothehi oa AFTD Helen-Ann Comstock, CEO oa AFTD Susan LJ Dickinson, le molulasetulo oa Boto ea AFTD David Pfeifer ba fane ka mantsoe a koalang a kopano, moo ba ileng ba bonahatsa nalane ea mokhatlo ha AFTD e ntse e atamela selemo sa eona sa bo20.

Libui tse ling tse hlahelletseng ketsahalong ea selemo sena li ne li kenyelletsa setho sa Lekhotla la Boeletsi la Bongaka la AFTD Chiadi Onike, MD, MHS; David Irwin, MD, mofuputsi ea ka sehloohong oa Penn Digital Neuropathology Lab; Tania Gendron, PhD, oa Tleliniki ea Mayo e Florida; Angela Taylor, mookameli e moholo oa lipatlisiso le bobuelli ho Lewy Body Dementia Association; le Laynie Dratch, ScM, CGC, oa Setsi sa FTD sa Univesithi ea Pennsylvania.

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mohlophisi

Mohlophisi e moholo oa eTurboNew ke Linda Hohnholz. O lula ntlong e kholo ea eTN e Honolulu, Hawaii.

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